A Patient Led Organization
envisioning a world where those with the STAG1 gene mutation are known, valued, and equipped to meet their greatest potential.
The STAG1 Gene Foundation is a patient led organization envisioning a world where those with the STAG1 gene mutation are known, valued, and equipped to meet their greatest potential. The goal of the foundation is to collaborate efforts to provide knowledge and support to clinicians and families, raise awareness in our communities, and further research within this disorder.
We want to put a name, face, and voice to the STAG1 gene mutation. These are the stories of those individuals.
Our motto is Support. Educate. Advocate. Here we provide information on connecting with other families, clinical resources, virtual events, and how to advocate for your loved one.
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