Medical History
Kirill was born in 2021, through a cesarean section, as he had a 3-fold entanglement of the umbilical cord, immediately screamed, on the scale of abgar 7-8, practically did not crawl, sat down at 5 months, went at 10 months, began to pronounce the words – mom, give, drink, Ika (sister), Dee (uncle Dan), then they got vaccinated in a planned basis, got sick with acute respiratory infections, and rolled back, stopped responding to the name, did not notice anyone. We checked our hearing – everything is fine, we checked everything we could, and at the end we did genetics, found a broken STAG1 gene. We got a disability due to mental retardation, we go to a specialized kindergarten. Learned to dress and undress with the help of adults, we refuse diapers. We constantly go to classes, speech therapist, defectologist, physical education, massages. A lot of specialists have changed. There is no information about such children in our country. Kirill is the first with such a disease. He likes it in kindergarten, on the playground he has difficulties with understanding other children. Now he doesn’t talk at all, understanding is at the everyday level, but we hope that we can help him with additional classes.
About Victor
He is 4.5 years old now. He likes cartoons, riding on the slide, loves the sea very much. He loves swimming very much. We plan to go there every year, but it doesn’t always work out. I like to ride a scooter, learn to ride a bike. I just like walking, as well as riding a car with dad, horseback riding, cartoons. Problems with eating. He likes only soft food.