STAG1 Stories

McKenna is our first born. My pregnancy with her was normal, but her delivery was difficult. She had shoulder dystocia and required intervention to be born. We were moments away from an emergency...

RJ is a 6-yr-old boy who lives in northern Mississippi with his parents and four siblings (two older and two younger.)  Medical History Elisa, RJ's mother, had a normal pregnancy but went into...

Florian est un garçon de 3 ans et 10 mois, originaire de Chaudfontaine, Province de Liège, Belgique. Il est né le 5 juin 2018 et est le second-né de Christophe et Corinne. Il a une grande sœur (sans...

Location:Houston, Texas Birth to age 1:Emily, Daniellas mom went full term with her pregnancy at 39 weeks exactly. This was her second pregnancy and everything went smoothly for both. The second...

Location:Branford, Connecticut Birth story:Nicholas was Amanda’s 3rd pregnancy, the pregnancy was normal until the 33rd week, when Amanda’s water ruptured prematurely resulting in an admittance to...

Location:Lakeville, Minnesota Date of Birth:November 12, 2007 Birth story to age 1:Liz was born at full term following an uncomplicated pregnancy. As infant, she struggled with sleep and feeding. At...

Location:Oklahoma City, OK Birth story to age 1:Miko was born full term via Cesarean, he weighed 9lbs, he had jaundice and issues latching on to breast and bottles. At 8 months he was found...

Name:Ask Langmo Åmot  Location:Gåsbakken, Melhus, Norway.  Birth Story:Rita carried Ask until one week past her due date, the pregnancy was characterized by abdominal pain. In week 30 of...

NameLuke Daniel Schneider LocationKalamazoo, MI HistoryBirth story to age 1: Luke was born June 20th 2019, he had no prenatal or delivery complications. He received his STAG1 diagnosis at three...

Location Baltimore, Maryland and Bella Vista, Arkansas. Birth story to age 1: Alyssa carried Ryder to term and had a normal pregnancy.  When Ryder was born he swallowed amniotic fluid, had two...